Spinal Muscular Atrophy (SMA) is a genetic neuromuscular disease that influences motoric nerves in the spinal cord. This disease lead to the disability. The pandemic of COVID-19 could be a challenge for SMA’s survivors in maintaining their body, especially the respirational health. Supported by Archipelago Scholar, Indonesian SMA Community conducted an online seminar series to deliver information on how to anticipate and promote SMA survivors’ health during the pandemic.
The topic of the first seminar was “How to Understand and Anticipate COVID-19 for Spinal Muscular Atrophy’s Survivor and the Family”. This topic was presented by dr. Dian Nurputra, M.Sc., Ph.D., Sp.A. from grade IV COVID-19 unit at Bhayangkara Hospital Yogyakarta. The second topic was “Respiratory Training for SMA Survivors during Pandemic of COVID-19”.This topic was presented by dr. Dian Marta Sari, Sp.KFR, a specialist in Physical and Rehabilitation in Hasan Sadikin Hospital Bandung. “The Influence of COVID-19 on the Function of Nervous System” was the third topic; presented by dr. Siti Aminah, Sp. S(K), M.Si.Med, a neurologist from Hasan Sadikin Hospital Bandung. The moderator of the three online seminars was Lydia Anggraeni Kidarsa, ST., M.Sc., MA (RCA) DIC, a type 3 SMA survivor.
Indonesian SMA Indonesia Community aimed to promote knowledge and awareness on the COVID-19 especially about children health, nerves, and respiratory for their members and societies to increase awareness. They also provide guideline of independent respiratory training for SMA survivors. Additionally, these online seminars serve as opportunities for virtual gathering for the members.
These online seminars were also open for public, not only for SMA survivors and the families, health professional and relatives with other disabilities. Participants were satisfied with the seminars and expecting other topics for future seminars.